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Hangin’ Out at the Petri Dish

28 May

Once in while, I have to share along those resources that really pop for me. The Petri Dish blog from Fred Hutchinson Cancer Research Center is great. Whether it’s a blog post about the latest research linking obesity and cancer or about 6th graders working with Hutch scientists to dream up new ways of fighting those mutant cells, the blog really rocks. Written in a friendly approachable tone, the posts are packed with helpful info and offer a direct feed from the the research work being done there to it’s potential impact on patients.

Check out Petri Dish here or in the sidebar links.

 

Insider Post with Guest Judy Ferraz

12 Feb

Catching up with the delightful and insightful Judy Ferraz…

by Stephanie Lile

Nurse Judy meets the Emperor of All Maladies, the book form of what she helps patients deal with every day.

Judy Ferraz, an RN care manager for the oncology floor at St. Joseph’s Hospital in Tacoma, WA, has served in a range of capacities over the course of her career. From hospital shift work, to office nursing, to charge nurse, and now care manager, she has assisted many cancer patients in their journey from initial treatment to cure or end of life.

“The thing I like most about my job,” says Ferraz, “is that I get to have a continued relationship with patients and families through the course of their treatment. This is unique to oncology.”

With initial chemotherapy being her usual start point with a patient, Ferraz finds that one of her key roles is in cancer education. People enter the world of cancer treatment—particularly that which must take place in a hospital, such as chemo for acute forms of lymphoma and leukemia—in a whirlwind post diagnosis.

Words, says Ferraz, are sometimes the biggest stumbling blocks. “All these words get thrown out that don’t have a lot of details attached to them,” she says. And it’s true, every work specialty has its lingo, and oncology (meaning here the study and treatment of cancer) is far from immune. “We often assume that patients and caregivers have a broader knowledge,” Ferraz explains. “But we forget that words like ‘cure,’ ‘remission,’ ‘chronic,’ ‘recurrence,’ ‘metastasis,’ ‘tumors’ (both liquid and solid), and ‘mass or growth’ have particular definitions in relation to the treatment and evaluation of each patient.”

In addition to the blur of vocabulary, it’s the lifestyle changes that are often most difficult for patients and their families to adapt to. “People have to be given permission to be in control and have a sense of normalcy in their lives during treatment,” says Ferraz. “ You really can have an impact on your status by adopting a certain attitude—are you sick or not sick?”  Those who adopt the “not sick, just in treatment” attitude often get through chemo much easier.

In the big picture of cancer treatment, and Ferraz has seen decades of it, the toughest questions that inevitably come up for every patient are “Why me?” and “How did I get it?” That’s the tough part. Although we’ve made amazing advances in treatment, we still haven’t truly nailed down why some people get cancer and others don’t. “G-shots have revolutionized cancer treatment,” says Ferraz (which here means shots of Neupogen or Neulasta given to many patients in chemotherapy to boost white blood cell production). “But the worst part of my job is that after all this time, it’s still so rare to be able to go, Ah ha! That’s it, that’s the thing that caused it.”

Despite these lingering questions, there have been great strides made in identifying genes that are linked to certain types of cancer. “If a woman has had combinations of breast, ovarian, and colorectal cancer, she should really get checked for the BRCA 1 & 2 genes. It can have serious ramifications, not just for her daughters but for sons as well since they could carry it and pass it to their daughters.”

While cancer is a scary topic for most of us, it’s truly people like Ferraz who help make the experience of treatment tolerable. After all she has seen and experienced, she still helps foster hope and champion dignity for all the patients she comes in contact with. Her dedication to cancer education and helping patients and families deal with the challenges and tough decisions they face is obvious. “Under the surface—no matter what our culture or social status—we are all the same,” says Ferraz. “Scratch the surface and we’re all scared inside and we’re all mostly good. Cancer has no clear delineator as to who it affects. So we should all live our best life all the time.”

…………….

Steph’s Note: Andrei and I met Judy during Andrei’s first hospital stay at the start of his 6-month Hyper-CVAD treatment. She was a wealth of information to Andrei then, and continues to be an amazing source of support to me since his relapse and death. 

Wake Up to World Cancer Day

4 Feb

In case you haven’t heard, yesterday was World Cancer Day, February 4, 2012. The goal was (and is) to raise awareness about cancer prevention and what we can do to “stamp out” cancer. I love this. The desire to stamp out cancer is GOOD. Yes, stop smoking. Yes, do breast and prostate exams. Yes, eat your vegetables. But seriously, stop polluting the damn planet. This is one of the biggest problems we face that only a few people have had the guts to take on. Why? Because tracing cancer to environmental contaminants means taking on big business and foregoing some of our average everyday conveniences. This may sound like a case for Erin Brockovich, but with knowledge gained from researchers in this field, we can all make a difference.

One such researcher is Anneclaire De Roos, a scientist at Fred Hutchinson Cancer Research Center. I came across an article about her work titled “Cancer and Chemical Exposure” in which research done by De Roos has found a possible link between contact with some persistent pollutants and the risk of non-Hodgkin’s lymphoma, or cancer of the lymph system.

Most of you have no doubt heard of PCBs (polychlorinated biphenyls) and furans, especially in relation to their affect on some animals, but like it or not, we humans are sucking them up too. Here’s why. “The study also showed a first-ever correlation between risk of non-Hodgkin’s lymphoma and higher blood levels of total dibenzofurans, or furans. Furans and dioxins form as byproducts of waste incineration and other industrial processes and are present in the environment at lower levels than PCBs.”

While other studies have linked PCBs to lymphoma, it was surprising to De Roos to find that furans were also associated with lymphoma. The point here is that we have to be aware of and not okay with the massive influx of pollutants that are literally causing our genes to mutate (in case you aren’t aware, this is what cancer is–but more on that in another post). And we can do our share to help prevent it.

When it comes to waste incineration alone, think about what you put into the trash and how you might change your spending and/or eating habits to avoid plastics, recycle more, and properly dispose of any toxic substance. Think twice about what you spray into the air or dump onto the ground or down a drain. I’m a fan of the statement, “If you won’t eat it, don’t dump it.”

So if you’re wondering what you can do to help prevent cancer for the whole world, aside from signing the declaration for World Cancer Day, think of one small way you can help diminish pollution.

We are what we eat, breathe, drink, and touch. We are our planet.

Get Swabbed, Baby!

19 Jul
DKMS Americas

Dr Marrow says "Get Swabed!" and save a life.

We’ve recently received the honor of being contacted by DKMS Americas, an organization that makes it their mission to get people registered as bone marrow donors. We’re hoping to have everything together so that anyone who is interested can register for the Be the Match Registry at the July 31 CHAIR-ity Event.

Cool swab kits, saving lives, what more could we ask for?

Oh yeah, getting Andrei well enough to receive the transplant from his 100% match donor!

Keep thinking and sending those positive thoughts his way. And come on down to dinner on Sunday July 31 (Joeseppi’s Restaurant in Tacoma, WA) to find out how we all can make a difference.

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